Tuesday, February 27, 2007

Very Short


----- Original Message -----

Here's a picture we took this morning of Karen after her second hair cutting on Sunday. Barber's shears are wonderful and easy to use.

The oncologist did a double take when he saw her yesterday. I'm not sure how many women he's encountered that have preemptively cut their hair this short before chemo. He never saw the intermediate stage, so for him it was quite a shock, from 20+ inches to 1.

Personally, I like this look better on Karen than the slightly longer, curly one that preceded it. I miss the long, wavy tresses, but know they will return eventually. I'm sure they will make some little girl's life slightly more pleasant while she goes through her own treatment.



----- End Original Message -----

Monday, February 26, 2007

One Down

----- Original Message -----

... 3 to go. Ok, not just 3, but more on that in a minute.

The first chemo went well. Karen didn't notice much as it was going on, which was good. Maybe feeling something now, but not much. We stopped for Panera and Starbucks on the way home. As she said, she was a good girl and deserved a treat. Starbucks mocha, it's like ice cream for adults.

She has 3 more rounds of the drugs she received today, every other week, with a white cell booster the day after and blood tests each week to monitor her white, red and platelet counts. Then 12 rounds of 2 other drugs every week after that. So chemo doesn't finish until the first week of July, if everything goes to plan.

But, as all the former military people out there know, the plan is the first thing sacrificed once contact with the enemy is made. Or to quote Mad Max Beyond Thunderdome: "Plan? There ain't no plan!"

Lots of fun anti-nausea drugs, and steroids from mild to "not mild." But a few free samples of some which is cool. And way more information than I ever wanted.

So from here out, no visitors with colds, pre or post (all others welcome), no rodents (on doctor's orders), no crowded indoor venues where lots of people congregate.

Oh, and her hair is almost as short as mine. Almost. And yet, she still has more of it than me. ;-)

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Sunday, February 25, 2007

Lymphedema


----- Original Message -----

Yet another term we hadn't heard before all this started. Basically persistent swelling resulting from having lymph nodes removed.

Karen got in to see the lymphedema clinic on Friday after much confusion between the doctor and the hospital. As it turns out, she has a touch of it in her left arm, something she will keep the rest of her life. They have given her exercises to manage it, as well as some to get back her range of motion. She will need a pressure sleeve to exercise and fly, but should be able to resume both once everything is done. On the positive side, her range of motion is good.

She has a few more appointments with the clinic and the physical therapist scheduled around how she feels over the next few weeks. I get to go with her to the next one to learn some massages to help manage it as well.

Chemo starts tomorrow and with it likely comes more terms to which we will become introduced.

More as we learn it.

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Ordeal



Every culture has its rites of passage, rituals reminding people of the structure of society, transitions when responsibilities are given and accepted. In martial cultures these tests, both physical and spiritual, are designed to segregate the weak from the strong. In that uncertainty lies the strength those tested will discover as they lay the foundations of community and prepare its members for the unscripted ordeals this life may bring.

At fourteen, I was honored by my peers to enter a society known as the Order of the Arrow. No fraternity in a collegiate sense, more a brotherhood of service. Those tapped had first to endure an initiation, a ritual known as The Ordeal.

It begins in silence and darkness, a circle of fire catching when a single flaming arrow finds its mark as the stillness is broken by a lone, piercing cry. Sworn to silence, we initiates gather our scant belongings, a bedroll and a knife, and return to darkness for a mile-long march that ends in isolation as we each pass the night alone beneath the stars.

The night is cold, half a decade below freezing. But the stars, sparkling pinpoints tinged from red to blue, spatter the satin fabric of the night, forming familiar patterns to an eye trained to connect the dots, a menacing bull, a hunter, defenseless sisters seeking his protection.

By morning my breath escapes in clouds. Frost encases my bedroll. As the day ages, the icy vapor turns moist. Trees drip dew frozen motionless mere moments before.

With the pale dawn comes my first test, a paper cup of water, two matches and an egg, a warm meal should I demonstrate my skill. Some choose to forego this challenge, satisfied with raw nutrition. I lay my kindling carefully, strike it with a single match and eventually am rewarded with a hot, hard-boiled breakfast to see me through the morning. There is an allegory in the paper, which only burns where no water backs it to quench the flames.

Together, we work the weekend in silence. The tasks set to us are physical and demanding: breaking, hauling and laying sod; repairing and roofing shelters; clearing roads; blazing trails. Our goal is to improve what others need, to leave better than we found, a motto of a sort. The work warms us where the day doesn't quite. At the end of two day's labor we return to a fire where we are released as initiates and welcomed in as brothers.

The lodge meets at the cardinal points each year, gatherings called Spring Conclave, Summer Service, Fall Fellowship, Winter Ordeal. The next winter we induct new brothers as we peer behind the curtain at the scenes that gave us such wonder the year before, reliving our experience as through a second sight.

I still cherish the patches, markers reminding me of a time I was tested and flourished. That was many years before the vision quest and the fasting and the scars to help remember other whos and whens.

Her experience is different, her selection not an honor but a trial bound in numbers, one in eight and one of three. Her days are filled with ritual: pre-dawn risings, demanding tests and the readings of vital signs. And waiting, always waiting, at each stage waiting, often hurrying to wait.

Her isolation is served one hour at a time, alone between 3 to 4 a.m. Silence is sworn by the few who increase their distance day by day until they shrink and fade, the shadow of their memories dispelled by the light of those who confront their fears and remain by her side as she confronts her own.

Her first task is to reconcile uncertainty with expectation, an unknown future with what she thought would be. Her labor comes in the wounding, the healing, the wounding again without complete recovery, some wounds leaving scars that will never heal. Fatigue sets in as she never quite regains her energy between yet is forced to shoulder her burden and continue as if on a marathon trail whose markers, if not whose destination, remain in sight.

She travels in the company of sisters, some known, some strangers, some physical, some virtual but no less real. Some labor beside her as fellow initiates, others instruct beyond the veil as I know she will once this phase of her journey is complete, a destination of a sort. Some simply bear witness, gifting her a daily dose of encouragement and caring, tokens she treasures more each passing day.

Our hero, like the phoenix, must perish in order to be reborn and rise victorious in the final battle. Only in that symbolic transformation is she equipped to defeat the enemy who stands before her. That is the cycle, the pattern of the wheel as it turns a circle, never twice touching the same point as it rolls along the road. Her journey, like the wheel, moves on as she surmounts one ordeal to be confronted by another, each begetting the strength to overcome the next.

A veteran is merely a blooded warrior who has survived her first battle and maintained the ability to fight. She enters the siege a veteran, the survivor she has always been. She will exit fully fledged in her lodge, ready to pass her wisdom to the new genesis of initiates inexorably chosen to repeat her ordeal year after year.


© 2007 Edward P. Morgan III

Thursday, February 15, 2007

In the Mines



On Saturday fortnight, a wizened gnome led a team of craggy dwarves before our gate, itinerate assayers drawn to the craning engines our alchemist erects. Mercenaries, true, but discriminating, their love of gold rivaled only by their enmity for dragons, trolls, and grendel-folk.

Surveying our fortifications, they focus first on the mortar bonds between the fieldstones of the gates, walls and towers, inspecting every joint, ensuring none has crumbled. Eventually, they declare the structures sound, but offer a gem of experience: grendels tend to burrow. Though our foundation appears solid, to their eyes it is full of fractures, veins and subsurface ducting that leave it vulnerable to mining, a perennial of siege. The surface war, while important, will be lost if the grendel undermines our defenses.

This diminutive quartet has a nose for minerals, scenting a thin, quartz fault beneath the overburden, just there within the wall. A trio of test wells are sunk from the sub-basement of each tower. Technetium is poured and traced through every fissure, cleft and crack. We descend the darkness by knotted rope and ladder, delving deep within hidden chambers, spiral stairways, sumps, and crystal caverns, mighty halls to these mountain kings. Finally, we stand at the heart of the stronghold's granite core.

Listening, they each press an ear to a different wall, attuned to the muffled ring of steel striking stone like hammer upon anvil at the distant center of a malignant forge. In silence we watch as they cock their heads first one way, then another, conferring in low tones between, then moving on until the entire castle rock has been assayed. Only after several more whispered moments do they declare the rock is strong, that no mining has begun. But they warn us to prepare the shafts for countermines deep within the fortress, a precaution.

Within the matrix they scatter arcane instruments, invasion drums that amplify the sounds of chisels so even our ears can hear the booming, a multi-headed dragon jar that indicates the direction of subterranean activity by dropping a pebble from one of its many mouths. The venerable gnome warns us not to tarry underground. Trolls lurk in ambush along dead-end tunnels, feeding on ignorance and isolation. Grendels derive power from the silence and the dark. We deny them victory by taking our place among the living, by interacting with life, not dwelling in the cold places beneath the earth.

Ascending a twisted stair, we emerge on the back bailey near the water gate. We read with the cats in the warm spring sun, watching as blue jays splash in a knotwork basin surrounded by blooms of lavender, pink and white, a monument to the familiar friend whose radiance guides us through the darkness, glad for any companions who choose to wander by.


© 2007 Edward P. Morgan III

Tuesday, February 13, 2007

Scan Results (redux)


----- Original Message -----

Oh, and Karen's back into work at least for a little while today, pretty much for the first time since the first week in January other than to pick some things up. She should be down there off and on for this week and next before we figure out how chemo goes (starting Feb. 26).

She has a follow-up with the surgeon this morning to check the port.

----- End Original Message -----

Scan Results


----- Original Message -----

Talked to Karen's oncologist yesterday. All her scans came back normal (yeah!).

Her heart scan showed an ejection fraction of 61% which is very good. Looks like all her exercise has paid off. The bone scan and the PET/CT showed signs of old injuries but nothing to be concerned about.

Very good news.

We went out wig shopping over the weekend. After trying a variety of styles and colors, Karen settled on something short and dirty blond with blond highlights in front. Even for that description, it's not radically different, but not close to what she has right now either. Now we'll see if she wears it, or just dons her Buccaneers hat for the duration. Or the Jayne hat that she is crocheting out of the most obnoxious fuzzy yarn in yellows, pinks, oranges and reds. It's based on a hat from the TV show Firefly, (kind of a ski cap with ear-flaps like a Yukon prospector might wear, if he were, say, Phyllis Diller).

By the way, in support of my adventure analogy, Bay Front Medical Center, where Karen had the first two of her surgeries, doesn't put account numbers on their bill, they have an "encounter number" (I kid you not). Way too funny.

That's what we know right now. That's probably the news until chemo starts.

----- End Original Message -----

Thursday, February 8, 2007

Griffin



Events settle within me like silt in cloudy water: stillness eventually reveals clarity. Waiting for the port to open, I survey our camp in the quietude of morning.

Through the mist many banners are obscured by distance. Others are withdrawn, allowing us peace while their owners wrestle with private shadows of this conflict. A few remain close and visible in the gray half-light: a coiled dragon, always welcome; a buffalo and crossed hammers beneath which several tents cluster; two bright, pink pennons looped atop banner-staves, signs of solidarity in sorority.

Above me hangs the most familiar banner, my banner, adopted as her own, a black griffin rampant on a field of gold. Half eagle, half lion, all razor talons, claws and beak, a fierce ally were hers a strictly a mythic fight. In the pre-dawn silence it is difficult not to become superstitious, attempting to read meaning into random events to make sense of the cold, sometimes cruel, pattern to this life. At times for solace, we are reduced to seeking omens, divinations of the direction this struggle might take, holding onto them like lovers in the night. By day, we scour the sky for talismans, raptors, her touchstone in difficult times. They favor us on every journey.

Mornings, osprey line light poles like soldiers at attention awaiting her review, or like sentinels guarding the causeway home. As we enter the bastion of a lab, one slews above its canopied entrance then drifts around a corner out of sight, its cries for a mate still piercing the sky.

Evenings, we catch the brown and amber hues of hawks, red-tails, red-shouldered, others whose names only she can recite. Some larger, some smaller, all are restless, lighting upon a wire only a moment before taking wing again, transient, migratory blessings.

At noon occasionally eagles glide the air, white heads and tails flashing, eyes hunting, their mere presence driving lesser birds from their demesne. They lend her their bold nobility, their strength and vigilance, signs that give her hope.

Another bird seems drawn to her as well. Crows follow, collecting like unpenitent Black Friars, gossiping like Poor Clares fallen from their vows, haunting our trees then darkening our skies with their laughter. In numbers they pay little heed to raptors, harassing hawks and osprey, even the lone eagle for sport. Tricksters of the Americas rather than their European counterparts presaging death or defeat, they point to our folly of setting a future in our minds and naming it a birthright, cackling at our outrage when life's pattern intervenes.

In the past weeks, both our hero's wings have been clipped. Once healed, she will rise again to flight, scattering their mocking murder like the mythic beast fluttering on her banner overhead.

© 2007 Edward P. Morgan III

Wednesday, February 7, 2007

Home, tre-ja vu


----- Original Message -----

Made it home. The port is in. No problems, just Betadine and bruising. But no bandages, just Dermabond which is a plus.

Karen is even more tired this time than last, napping already. They didn't want to let her go as her normally low blood pressure was even lower (81/51). They relented when it climbed to 90/51 when she stood up.

Long morning, different hospital, different procedures.

Follow-up with the surgeon next week sometime. Chemo starts on 2/26.

----- End Original Message -----

Monday, February 5, 2007

Trebuchet



Timber by timber, we raise our lethal engine. Lever arm, angles and angular momentum, its deadly lattice looms over our protective wall. Sounds of the felling, skinning and sawing of logs rise before the dawn, falling only with the failing light of dusk.

In this framework of fact, growth rings of research build one upon another in alternating eras of inspiration and understanding. Care is taken to select only properly aged and seasoned wood. Too green and the beams will twist beneath the counterweight. Too dry, they split and shatter with the backlash of each shot. Sinew binds each joint with the strength of totem spirits.

The pivot pole is capped in the cold-forged iron of experience, the socket greased with empathy without which the machine would wrench itself apart. From the throwing arm, ropes of hemp mixed with virgin lamb's wool dangle. Warrior women weave a sling from the fire-threads of hair our hero cut away to impart a final whiplash to each departing round.

Our mage-general, at once both engineer and architect, oversees construction as well as the insertion of a secret sally port behind a salient in the wall, a new postern through which we will raid and burn the enemy engines, sowing a dense dose of Greek fire through their camp each fortnight, alternating between the darkness and light of new and full moons. Apprentice alchemists weigh every shot for range and volatility as they tamp each clay vessel then stamp their seal in its protective wax. Too precious to waste on ranging, we rely on the targeting sticks set at intervals beyond the wall. In the upcoming battle, we anticipate only minor adjustments before we volley for effect.

Stone by stone we fill the counterweight box with information. We glean castoff blood tests from the rubble of interior walls, quarrying larger scans from the granite of the castle rock. Night and morning, by moonlight and by sun, we haul the jagged rocks. The sledges are heavy, the load can be exhausting. Backs bent, muscles aching, we stumble but continue, rest the domain of the wicked and the dead.

Soon, we strain upon the ropes, drawing them down inch by inch until we capture the moment with a single hook and pin. Taut and creaking, it settles, a coiled serpent readying its venom for a strike.

Tense with trepidation, we await the command to loose, fearful of the price of victory once the siege begins.

© 2007 Edward P. Morgan III

Thursday, February 1, 2007

Vigilance



The logistics of siege centers on the marshalling and rationing of resources. Time and energy become commodities. In the calculus of caregiving, each earns its own spot market where futures are traded and options bought and sold as they compete in a zero-sum game.

In this realm, sleep is the fundamental currency of exchange. Like a soldier, I know my duties must be performed regardless of fatigue. Enemies, like infants, rarely schedule their activities during convenient daylight hours. That is the first lesson every recruit in every military is taught the first day of training, one every mother learns without instruction.

Sleep changes during crises. Subconscious filters engage separating need from distraction. My ward stirring rouses me where the music from an errant alarm has not. Her rising to silence it snaps me awake wondering what is wrong while my dreamy consciousness thinks, oh, music, how pleasant, never connecting the two events. A gasp of pain after midnight from the drain biting has me instantly alert and on the move, unable to sleep again until her pain has been relieved and her breathing steadies and deepens. Only then do I feel it's safe to drift again.

I become a thief, a corporate raider, as sleep becomes a stolen treasure. Afternoon, evening, morning, night, none better than the other once the siege begins. Chair, floor, car, bed, like a world traveler, I improvise with what's at hand. Waiting room and bedroom become interchangeable. Like a cat, I squander no opportunity. Time has no meaning except in terms of hours of energy remaining and hours of reserves replenished, a running tally fluctuating from day to day like the index of a stock.

When sleep closes low, fatigue flows over my thoughts like molasses, slowing them, obscuring them, pulling them down toward slumber. I must not let it until the job is done. Each action is taken carefully; frustration is magnified by exhaustion. Like a veteran, I understand my duty must be performed regardless of distraction. Heat, cold, fatigue, darkness, none may interfere.

On the eve of each procedure, my mind races through minutes into hours, running through preparations like a mantra, a compulsive checking and rechecking of lists until my consciousness becomes bored by the repetition and sleep nuzzles in until the alarm sounds too early.

In time of war, human sentries stand watch regardless of how many clockwork sentinels and tripwires lay beyond the wall. Vigilant, I sleep with one eye open, the other dreaming of a happier, more restful future.


© 2007 Edward P. Morgan III

Update 2


----- Original Message -----

Back from the oncologist.

A slew of tests scheduled. A MUGA (MUltiple Gated Acquisition scan) to get a baseline for Karen's heart function on Saturday (yes, you read that right, Saturday). A bone scan on Monday to check for any spread to there. A PET/CT scan on Tuesday, to check for other tumors. Then the port installed on Wednesday. Busy, busy week, a second if we include this one.

Chemo starts Monday, 2/26. Dense dose, every 2 weeks for three months to start. Need to do more research there.

That's what I know right now. A tiring day today even with the good news earlier.

----- End Original Message -----

Update 1


----- Original Message -----

Back from the surgeon. The drain is out (yeah!). Karen is much relieved to have it out and be able to shower again.

Pathology: 5 nodes removed, all came back negative. Good news.

Karen is scheduled to have a port put in next Wednesday (unless there is a cancellation on Monday) at St. Anthony's this time. A loooong pre-registration (1 1/2 hours). Bay Front seems much more efficient.

Got some lunch out on the way home.

Oncologist this afternoon.

----- End Original Message -----